I miss you Sam!!

I miss you Sam!!
I miss you Sam!!

Wednesday, July 15, 2009

Looking Back - Part 11 - Medical Miracles - More or Less

I'm on a roll with this "Looking Back" series because there have been so many things triggering my memories these days. My daughter Kerith’s birthday is next Monday, and I found myself thinking about the birthdays of my all four of my kids – none of which I was supposed to have, and this in turn led me to reflect on my experiences with the medical profession. That’s not hard to do these days when there seem to be more and more nightmare tales of screw-ups not only by doctors, but hospitals and other health care facilities.

My kids and I have frequently joked that we are alive today in spite of doctors rather than because of them and because we spent their early years on a military base I soon became convinced that all the medical students who made Ds in med school automatically went into the military. The fact that I even had a child period, much less four normal, healthy ones was considered unbelievable unless one believes in miracles - which I do.

I had been told early on by several doctors that my chances of getting pregnant in the first place were slim to none, let alone carrying one for a full nine months. But get pregnant I did just three months into my marriage. I carried my baby full term and delivered an eight pound, very normal and beautiful little girl. Needless to say, I thumbed my nose at that early diagnosis.

As soon as my husband returned from Vietnam I promptly got pregnant again but this time, in the process of moving to Germany, I did miscarry. It ended up being a nightmare experience with one complication, one misdiagnosis after another. It took two months before I even began to feel normal -- whatever that is for me anyway. Not sure normal was ever a discription.

We thought that perhaps my first little girl was a miracle and there would be no more. Wrong! Three months later I found myself pregnant again and shortly afterward we were transferred to Madrid, Spain. Again, it was a very normal full term pregnancy, but about a week before I was due I woke up with what felt to me like pleurisy pains and we made a trip to the air base hospital. There I was told by the doctor that there was no indication of anything wrong and I was just getting anxious to deliver and he sent me home. The next day it was worse and we went back to the hospital. This time a different doctor took my husband aside and told him there was nothing wrong with me, I was not in labor, but if he wanted to leave me at the hospital for the weekend, he’d okay it. Wisely, for his own sake, my husband declined the offer. The following day we made a third trip and saw still another doctor who said he could find nothing wrong either, but asked if I had been x-rayed earlier. When I told him no, he said that real or imagined, I was obviously in pain and I was certainly far enough along that an x-ray wouldn’t injure the baby and urged me to have one. It turned out that I had walking pneumonia and the pain I had been experiencing was indeed pleurisy and, with a proper prescription this time, I was sent home. Four days later, pneumonia free, I gave birth to another perfect little seven and a half pound girl. Within three more years I had – remarkably given birth to two more perfect, healthy babies – boys this time. And they’re all still miracles to me.

Over the next years my wariness of the medical profession and aided by extraordinarily healthy children, we were pretty much able to stay out of doctor’s offices except for routine shots etc. Then when my youngest son, Adam, was eighteen months old, our whole family was returning home in the car from an evening swim at the local indoor pool. The kids were hungry and quickly found a jar of their Dad’s favorite dry roasted peanuts between the seats. There was a lot of giggling and teasing and Adam quickly choked on his peanuts. We whopped him on the back and a peanut flew out of his mouth and we continued on our way home. The following morning he was flying around the house as usual, but what wasn’t usual was the fact that he rattled. By mid day it was obvious that the rattle wasn’t going away and I took him in to see the pediatrician. I told him what had happened the previous day. He listened to Adam’s chest and x-rayed him, but could find nothing. I told him again about the peanuts and he patiently explained how it was impossible for Adam to have inhaled a peanut because the oil in the peanut would have set up an infection that would have resulted in pneumonia almost immediately. I explained that they were dry roasted peanuts and he sighed and shook his head and asked me to bring him back in the following day if he was still “rattling”. The next day Adam was still rattling and the doctor still couldn’t find anything, but admitted there was definitely something not right even though Adam was still tearing around like a normal eighteen month old – he just rattled. The doctor then sent us to a thoracic specialist, who also listened and x-rayed without results. I told him the same story of the dry roasted peanuts and got the same head shaking response – impossible, he said. For the next five weeks Adam was subjected to every imaginable test – all to no avail and while he was still tearing around, he was also still rattling.

By that time the specialist said they had no option other than to fluoroscope his lungs and that had to be done in the hospital and could have possible side effects. But, feeling that we really didn’t have a choice, we took him in and I spent the night sitting beside him, feeling so frightened because he looked so small and helpless in that big hospital bed. They were supposed to take him to the operating room at seven the next morning, so he wasn’t allowed to have anything to eat – tell that to a hungry eighteen month old! As it turned out they didn’t come get him until nine and by that time both his Dad and I were worn out from carrying him around the ward trying to distract him from thoughts of food. Adam saw a nurse coming out of a room with a tray of food and kept trying guide his Dad in that direction by tugging his ears like a steering wheel.

Finally, they came for him and let him take his “blankey” with him. I was fighting back the tears and clinging to my husband’s hand. Adam looked so tiny and helpless as they rolled him into the operating room. The next hour seemed like thirty. Finally, the doctor came out and walked towards us.

“Boy, is my face red,” he said, with an embarrassed grin.

“You found the peanut, didn’t you?” I asked, trying not to leap on him scratching and biting.

He nodded.

“I’ll certainly tell all my patients from now on that if they’re going to let their kids eat peanuts, make sure they’re dry roasted.”

Fortunately, Adam was fine and within a couple of days he was running around again, but this time without the rattle.

I’m still wary of doctors and the frequent headlines about the medical and pharmaceutical professions don’t do a lot to encourage trust. But I’ve been more fortunate lately and have no personal complaints.

And as for Adam, well, like his siblings, he’s grown into an incredible young man that I’m outrageously proud of – definitely one of the four best things his Dad and I ever did – in spite of the medical profession.

A note of explanation, my oldest daughter, Robyn is a terrific photographer, but prefers to remain behind the camera, so I have very few photos of her. Also, she and her husband live in Michigan and we're not able to get together as often as we'd like, particularly these days. But believe me, she's beautiful!

13 comments:

Elizabeth Bradley said...

An entire team of doctor's misdiagnosed my toddler grandson, leading to a series of preventable seizures that have rendered him brain damaged to such a degree that he will never eat, (he has a feeding tube), sit up, walk, or do what normal children do. To say I don't trust doctors is an understatement.

Joy said...

What nightmares! I know what you mean about surviving in spite of some doctors. Oh, Elizabeth, what a horrible outrage!

Anonymous said...

What a scary episode! I am so glad you were persistent. How were they able to get the peanut out of his lungs? Was it major surgery?

soulbrush said...

what a brilliant post, thanks, enjoyed it.

Roshni said...

these incidents are truly unfortunate and outrageous to say the least. I am glad to be associated with a clinic which has exemplary in all its interactions with me, my husband and my kids. I guess its not such a common thing to say nowadays even in America!

Linda Reeder said...

There's no question that you have to be a advocate for yourself and your loved ones when it comes to the medical profession. And it isn't always easy to do, or to get anyone to listen or believe you. Elizabeth's story is tragic. I'm so glad yours isn't.

bobbie said...

I must admit, I have very little faith in doctors in general - mostly due to the fact that I worked with them for so long and am all too aware of their humanity. Nothing annoys me more than any doctor telling anyone that something is "impossible".
Your children are indeed beautiful. I'm sure that the photographer among them is too.

Darlene said...

My son put a BB in his ear. We told the doctor it was the left ear, but the doctor found BB's in his right ear and didn't go a thorough check of the left ear. Because he didn't believe us, there was a BB in the left ear and it got embedded in the ear drum. It called for surgery under anesthesia to remove it.

Mary Ellen said...

Great story - don't stop with the memories!

pink dogwood said...

what a good looking family. I am so glad that you proved all the doctors wrong. Your incidents remind me of when my kids were much younger - I guess we all have few of these stories.

I love and look forward to your "Looking Back" series.

magiceye said...

amazing! thank god for miracles!

Indrani said...

Nightmarish experiences!
Thank God, you kid was out of it.

robin andrea said...

I really like your "looking back" series, sylvia. Your stories are quite engrossing, and your children are beautiful. I definitely understand your eldest daughter's preference for being behind the camera. Maybe that's just the predilection for children named Robin (or Robyn!).

What Can I Say?

What Can I Say?
I'm interested in almost everything. Use to like to travel, but it's too expensive now. I take Tai Chi classes, swim, volunteer in a Jump-start program for pre-schoolers. I'm an avid reader and like nearly everyone these days I follow politics avidly. I'm a former teacher and Special Projects Coordinator for a Telecommunications company, Assistant to the President of a Japanese silicon wafer manufacturing company. Am now enjoying retirement -- most of the time. I have two daughters, one son-in-law and two sons scattered all over the country. No grandchildren.

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